A woman on a mission to raise awareness of the hidden impact of MS

I’m the photographer in our family, so pictures of me are few and far between. And I debated about whether to use this one, looking as wind-swept as I do. But I think it embraces the spirit of what I’ve tried to convey in my book: Don’t let multiple sclerosis stop you from doing the things you love – even on a bad-hair day!

So there I am, standing on the top of the Aiguille du Midi in Chamonix, France, with my favorite traveling companion strapped around my neck, and a grin on my face that reflects my joy of once again being in the mountains, even though I wasn’t able to ski. Life is different with MS, to be sure, but I’m determined to keep calm and carry on, no matter what it brings.

I was diagnosed with relapsing-remitting MS more than a decade ago, but you wouldn’t know that just by looking at me. I’m not visibly disabled in any way. My most challenging symptoms are depression, anxiety, bladder dysfunction, cognitive impairment and fatigue.

In writing this book on the invisible aspects of MS, I’ve drawn on my personal experience with the illness, my life as a wife and mother, my love of travel, photography and music, and my passion for the written word. And I’ve called upon my training as a journalist to expand and enrich my story with factual information that will deepen your understanding of MS (and especially its hidden effects).

It’s my belief that many other people with this illness are following a path similar to my own. If you’re one of them – or you’re newly diagnosed – I hope that my book will give voice to your experience and make you feel less alone.

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Faulty Wiring: Living with Invisible MS

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